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My MSA journey, an autonomic failure

POTS, OH, generalized dystonia, dysautonomia

Jessica "sami" Pennington
23 February 1967
External Services:
  • samibebe@livejournal.com
  • sami-pennington
I am opening this journal for others to discuss with me what it is like to have a neurodegenerative disorder. I have Multiple System Atrophy. Please feel free to ask questions and visit my youtube channel, http://www.youtube.com/samibebe2

Many of us are trying to unite who have dysautonomia and generalized dystonia. These conditions are widespread, sporadic and rare.Help is in unity. Although the medical community fails us, we have each other.